Most of us have
fond memories of our childhoods, learning to ride a bike, jumping in muddy
puddles without a care in the world. If a grown man ran about jumping in
puddles while giggling happily I’m certain he would get a few funny looks, or a
strait jacket. I have many fond memories as well from my upbringing. Ah,
childhood, where I was still at my best. I could walk until I was eight years
old or so, but in spite of that I was still fairly strong. I could wheel myself
around, sit in a normal chair without falling over, and best of all I could
breathe perfectly well! No stupid masks and machines.
I was born in
1989, just in time to avoid most of the 80’s. Well, there was some sweet music
from that decade, but the fashion and the style was terrible, to me anyhow. Shoulder
pads, strange hairdos and those dreaded pastel colors. I remember I had a
dresser with drawers painted turquoise and purple! Oh well, I know some liked
this style for reasons that are beyond me. It was the year the Berlin Wall
crumbled, not that I recall anything about that. I like that thought, as if the
wall had to come down because I would be
born.
The first years
of my life was spent in a row house, I believe that is the English term. Small
houses all connected on a row. Once it was clear I had the condition I have my
parents realized we needed more space. There were wheelchairs and other things
waiting in the future. When you’re born with a condition like mine it’s very
important to plan ahead, prepare yourself for something that might not come in
years, because it will come. I believe this attitude has saved my life on many occasion,
I’ve gotten help before it’s too late. So, at the age of five we all moved to
our current home. Me, my sister, father and mother and of course our dog at the
time: Blue. I feel it was the best choice they could have made for me, as I’ve
expressed before, I love my home.
I started school
shortly after we moved, it was quite exciting and the primary school here was
and is still amazing. When the weather is nice I enjoy an evening walk, or
drive around my old school. Just to see what’s changed and to think back.
Losing the ability to walk was one of the darkest days I remember, but it had a
few perks. In wintertime I could stay inside and play computer games or play
with toys while the other kids were out there freezing their fingers off. However,
staying inside with only adults to keep me company did get lonely, so I was
allowed to pick two classmates who could stay inside with me. This ended up
having an unintended side effect.
There were two
boys I used to play with, thinking they were my friends and that I could depend
on them. Sadly I think they took advantage of my condition instead, they could
stay inside, and all they had to do was play with me. How sad is that? Kids can
be cruel sometimes, often without realizing. I learned that the hard way. When
I truly needed them, they were never there. When I was a bit older I kept a bit
to myself on the playground. I had just gotten my first real electrical
wheelchair. It looked more like a car, with 4 large tires it was built for
almost all terrain, quite impressive, huh? It was called the “Exterior” and we
had many adventures together.
That chair was
so cool that when I drove through the schoolyard a younger kid would roll up
next to me on his tricycle, look up at me with big eyes and ask; “Do you want
to trade?”. If only he knew what exactly he was asking. Sure, I’d gladly trade
you my chair, it comes with a muscular condition. Then I’d happily roll away on
my brand new tricycle, into the sunset. No, no, I wouldn’t wish that on the
poor kid, so I laughed it off and drove on. It was a cute, innocent question
after all, a question I’ll never forget.
I found
salvation in my game boy, just sit there for hours and dream away as Super
Mario jumped on mushrooms, collecting coins. Of course I couldn’t hide in that
little device all the time and sometimes I just felt like being alone. I drove
to the far reaches of the schoolyard, up a small hill. Then I stopped and gazed
out over the yard, watching kids play, climb trees, build castles in the sand,
ride bikes and use the swing set, all the things I could no longer do. That’s
when the tears come, in moments like that. Life can be unfair at times and even
if I try my best to keep positive it will always be there, buried within my
very soul.
After this
secondary school went alright, even if I was secluding myself more and more,
retreating from the social scene a bit. I decided to focus on schoolwork, be
the best I can be there, show the world I’m no fool at least. I believe I succeeded.
Sadly I had no idea how to make new friends or how to keep them. There were a
few in my teenage years at school, but lost contact with them now. I continued
getting good grades, in most subjects, except math! As you might have guessed,
terrible subject. High School was a bit rougher socially, I wasn’t bullied or
anything, but I felt like an outsider, and some of that was my own fault.
In high school
there were parties, attractive girls, mopeds! So many things a boy at 17
desired, but they were all just dreams, things beyond my reach. I would drive
around the parking lot, admiring the mopeds and motorbikes, even the scooters I
envied. The idea of driving yourself to school instead of waiting on a special,
green bus was so alluring to me. When the bell rang I was ripped out of my
fantasy, typical, just as I was about to pick up the cutest girl in school and
drive some place romantic. Oh well, dreams are nice that way, you can always
visit again.
I graduated with
flying colors, beating most of my classmates. I was among the best, but I felt
so lonely up there. There were so many things I had missed out on, friends I
could have made if I had just forced myself to be more social. I guess I’ll
always be a bit shy that way, but as they say, it’s never too late to change.
So, in conclusion, did I have a good time growing up? In spite of all the
hardships I’ve faced I will have to say yes. I’m happy with how my family
raised me, how I was looked after. I’m grateful to be alive and I have many
good memories as well. However, I can’t forget the bad things; they have made
me the man I am today. It has taught me a lot. There is only one quote fit to
end this entry, it’s from a song, from the 80¨s even!
“When the going
gets tough, the tough gets going”.
Keep writing. It is so wonderful, sad and lovely to read.
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